PATIENT’S STORY

From complete dependence, a step towards independence

The child had a normal delivery but developed jaundice on the fourth day of his birth. As a result, he was under phototherapy. He was not able to grasp any of his objectives till the age of one and was under constant rehabilitation. He was the second born to his mother. His mother had a normal delivery with the first child. When she was on her second pregnancy with the child, she started bleeding at two months and was on complete bed rest for seven months.

It was their family physician who advised them on Stem Cell Therapy.
After he was brought to Neurogen, his case was studied neurologically and he was found to be hypotonic and hyporeflexic. He had all sensations intact, normal cognition, vision, hearing, oromotor control with slurred speech. He had a fair voluntary control in the upper extremities and poor in the lower extremities. He could stand with the help of bilateral AFO and walker and walk a few steps independently.The study of the MRI brain was conducted as a routine study. He was dependent for all his daily activities and mobility. He scored 49 on Functional Independence Measure.

Improvements seen in the patient post stem cell therapy

  • His dystonic movements noticeably lessened.
  • His neck control was better and he could take control of the neck movements properly for an extended time period.
  • His sitting and standing posture improved and he could keep his posture more upright.
    His hand to mouth coordination was much improved and he was able to bring food like chapatti to his mouth.
  • His joints were more flexible especially the area around his knees improved and he could extend it more.
  • His parents reported that his speech became more clear and distinct.

Following the Stem Cell Therapy after three months, his speech visibly improved particularly in giving unprompted speech and he was able to speak a full sentence. His dystonic movements improved noticeably. His neck control along with the voluntary control of all the four extremities became better. He began to use hand to eye coordination particularly while playing with toys.

Improvements seen in the Patient post Stem Cell Therapy

The patient visited the centre again after six months for her post stem cell therapy evaluation. The improvements noted in the patient were as follows

Subsequent to his stem cell therapy after six months, the following improvements were seen.

  • His dystonic movements improved significantly and for that reason, he started making use of his right upper limb more frequently during his daily activities or during play.
  • His sitting balance and neck control had improved further and he could sit without any support for few seconds. He could continue to sit cross legged from long sitting given the fact that his adductors spasticity had lessened.
  • He was able to do bilateral activities like clapping and catching the ball

Improvements seen in the Patient post Second Stem Cell Therapy

After taking note of all the improvements, they decided to go for a second Stem Cell Transplantation. The following improvements were seen in him.

  • His dystonic movements lessened mainly on the left side and the voluntary movements of his knees were better.
  • He was able to sit on his knees thus keeping up his neck erect.
  • His eye to hand coordination had improved. He could grasp the bottle better and drink water on his own.
  • His speech improvement was constant.

So it shows that after Stem Cell Therapy, his improvements were constant and sustained.

What the patient’s parents have to say?

We thought he would never have a normal life but we are thankful to the whole team of NeuroGen for taking things into your hands and helped my son see the world from a different light, says the child’s mother. Before he could not even finish speaking a full sentence but today he is able to speak fluently. His movements are no longer static and abnormal. He has better control over his neck movements. Now has begun to enjoy his playtime more, and use hand to eye coordination especially while playing with his toys. Today we can make out what he is trying to convey to us through his words and not his actions.” He has become independent for all his basic needs. So here is once again a big thank you to all of you.”